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Congenital Sucrase-Isomaltase
Deficiency (CSID) NORD Registered
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Symptoms
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Sucrose
and Starch in Foods including parent's comments about tolerances for groups A and C only. This information is being provided only for licensed physicians and dietitians treating and caring for patients who have been diagnosed with CSID using a small bowel biopsy. For the Physician and Dietician: These tables are based on gram weights of 100 grams per item. All foods are raw unless specified and all foods are without added sucrose if dried or canned. All foods should be weighed on a gram calibrated scale not in ounces or pounds. This table does not calibrate differences for variety or region where produced. Foods with naturally occurring sucrose of less than 2 grams per 100 grams of food are generally reported by parents to be tolerated without the use of Sucraid. Some children shows signs of greater intolerance to sucrose and require Sucraid for all foods containing any sucrose per 100 grams of food. Some children may have results which differ from results our parents are reporting. Children in group A may be able to ingest very small amounts of starch if the physician or dietician determines some tolerance for starch after testing, we have not included starch in this table for group A. A dietician or physician will have to determine the level of sucrose and starch tolerated for children in all mutation groups. Parents report children with mutation C can ingest starch at 40-to 50 grams per serving twice to three times per day. Contrary to many medical journals which suggest all children outgrow their symptoms, following up on 1157 children and adults we only have reports of improvement in starch digestion for mutations B and C reaching maximum improvement at age 3-1/2. We have no reports of improvement in sucrose digestion for any age group without the use of Sucraid as an artificial enzyme. Fruit and fruit juices should be ingested with other foods to avoid natural laxative effects. These tables do not identify other allergies or intolerances children may have due to other medical conditions.
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